Anyone have any good info on help for Fibromyalgia. I would love to here anything.

Go to the forums under chronic disease sufferers there are several threads on "Fibro" or Fibromyalgia. You will find much info there.

Here is a list of centers which specialize in FM. Maybe there is one close to you: http://www.fibroandfatigue.com/center_locations.php

Barb, Thanks for your response. I have posted some other threads and have not gotten any reponse. It makes me feel sad so thank you again. I have gone to the more recent forums on this subject but I'll have to go a little deeper. I was mostly wondering whether someone has tried anything new that has helped them recently.

Beyond, Thank You too. I have actually sent for and received the info on the center in Salt Lake City which is 3 hours from where I am but I have no insurance and no extra $ to go. Although I just e-mailed them to see if they have any payment plans and how manyu appts I would need where they are so far away. Do you have Fibro and if so have you gone or know of anyone who has gone to these centers?

Thanks again to both of you!!!

Soblue
If you'd like to email me or pm me I would be happy to talk to you about my experience with fibromyalgia and what has worked for me---I no longer have major problems with this. But from 1994-2001 I felt like I had the flu about 9 months of the year. Good luck

soblue,

I take it you are newly diagnsoed with fibromyalgia? I can help you with information and resources, and there may be a support group in your area which could be beneficial to you.

I've been "diagnosed" for about 3 years now but I think I've had fibro for at least 10 years. I have a friend who has been on guaifenisen for about 5 years now and he is doing much, much better. Go to: http://www.fibromyalgiatreatment.com/
for info on this. There are a lot of somewhat "hokey" remedies and treatments for fibro out there, some have worked for some people with managing their symptoms, but this is the only treatment I have heard of where some people have recovered most of their former health. Of course, it hasn't worked for everyone, but keep in mind that there have been no long-term ill effects from it.

Believe me, I understand - this is a tough illness. Let me know how I can help.

Boo

Dear Soblue...I feel your pain, literally. I have osteoarthritis, anf fibromyalgia pretty much everywhere. My Drs. are using anti-depressant namely (cymbalta) and aquatic therapy. There is also a great website...very informative...go to www.mayoclinic.com it's a one stop shop on fibro...hope this helps. the water therapy help but no major changes for me. I'm going through a bad spell now...good luck

Boolea, thanks for the response. I was diagnosed with fibro clear back in about 1993. I was lucky to have a cousin who was a rheumatologist and knew about this condition. I have tried so many things and nothing seems to help even good vitamins. I have never heard of guaifenisen but I'll sure research it out and thanks for the website I'll check it out right now and let you know how it went.

Gaylescats, I'm sorry about the bad spell your going thru. Is the Cymbalta just for the fibro or for anxiety and depression too. I was just researching that drug before I got on this forum because I am going back downhill with the anxiety and depression so I don't think the Lexapro I'm on is working as I once thought. I'm not sure whether to give it a while or switch. I lived in a bigger town when I put my husband thru school back when I was diagnosed with Fibro and did the water therapy then. It felt good. Where we live now there is no decent swimming pool so I can't do that but I still hope there is something out there to help us all. I'll go into your website and study it out. Thanks for your response and I hope your pain lifts soon.

Dear Soblu

Sorry for the delay...haven't been on regularly...I'm working on getting better about that..sorry to hear the Lexapro isn't working...the Cymbalta I was on for 2 year, off now..but...it is an antidepressant that also help with physical ailments some people have who are diagnosed with depression...thats the claim, but I never really noticed it helping with my physical aches,pains, but did seem to work as antidepressant, until I had my latest meltdown...so take it for what it's worth..hope you feel better soon

Soblue...Drs. now also have me on Neurontin to help with arthritis, fibro..I'm on 900mg day..think they need to up it.

I have fibromyalgia and found these to work best:
1. Exercise first thing no matter what else is on the menu for the day!
2. Meditate!
3. Surround yourself with positive people and just let go of the negative ones!
4. Get help with programs that will treat your difficulties, like this one!

Thanks for the replies Galescats and Meadowlark, I am sorry I haven't responded for a while. Been going thru a bad phase with the anxiety and fibro. I am weaning off the Lexapro and going to try the Cymbalta.
Gaylescats, I'll have to research the Neurontin. I sure hope it helps. Let me know.
Meadowlark, What kind of exercises do you do. I walk alot and sometimes jog if I can and need to get out the anxiety. I also like to ride my bike. I wear out fast. Haven't been doing much of anything lately feeling worn out and tired and I'm gaining weight like crazy on this Lexapro. I am pretty sure it's the Lexapro thats making me so tired. I get nervous when I try to do even the relaxing tape because I very seldom have time to myself. I'm either at work or the kids are knocking on my door and I get nervous even if I try to listen when I go to bed because my husband is either there or comes in and then I'm wondering what he's thinking. Crazy huh? Sorry we're not supposted to use that word. LOL! I exercise in the evening or at night because I'm more of a night person. I will have to find time to myself to meditate. Every thing I've read or looked up says to take time to relax. How do you meditate? Maybe you can give me a few pointers. I'm slow with the program. I work well on it for a while and then blah out. It's funny when I am working on it I feel better and like there is a chance to get better. I realize I can only get out of the program what I put into it. I can only say I just get plain down and tired. Thanks again for your responses and I hope to hear from you again and know how you are doing.

Soblue,
For starters, do start slow with the exercise...stretching. What really helps is swimming since I am not pounding the body. For meditation, I memorize a favorite passage, poem or whatever and then repeat it slowly, concentrating on each word and then just listen to the silence. In warm weather, it is nice to get up before others and listen to the birds. Keep in touch.
I am finding a direct correlation between lack of exercise, negative thoughts and increased fibromyalgia pain.
We have some choices here.

I struggle with chronic pain, also. I have been diagnosed with both osteoarthritis, and rheumatoid arthritis. I also believe that I suffer from fibromyalgia. I agree that exercise and proper nutrition are essential to managing this pain. I have also found a supplement that claims to be patented for fibromyalgia (I've actually read that this element is essential for treatment of fibromyalgia on-line independent of the supplement company). When I use this supplement regularly, I've found it to make a tremendous difference in my pain levels! If you want to try it, please contact me and I'll give you the information.