I have a 19 mo old that just had open heart surgury. She has an enlarged heart and that had to go in and conect valve to atery? It is a very rare heat defect. Riley hospital usually only has 1 patient a year with her heart defect and she was accually there second. I have another daughter taht is 5 mo old and she has polysystic kidney disease,beckwithwwiedman syndrome, atrial flutter (heart) high blood pressure, sleep apnea, macragalassia, failed 4 hearing tests (abr tests), feeding tube, trach (floppy airway).....does anyone have any information on anything? I need to know as much as i can for her....
*~MANDA~*
Posts: 218 | Location: Columbus,In | Registered: March 20, 2007
You might want to take a look at the website mayoclinic.com. I didn't try to pull up any of the issues you emntioned, but they have a wealth of information about specific health issues, and links to many more.
Good luck, and don't lose track of the Program. It may help you find strenth you weren't aware of in tough times. A stronger you is good for you and your family.
Since I'm here, has anyone out there been diagnosed with rheumatoid arthritis? I was diagnosed last August with a rather aggressive form. Thank God for Methotrexate, but I've been at 10 pills/wk and the symptoms are progressing again. Can't tell you how much I wish Prednizone was safe for long term use!! Any Humeria users? How long have you been using it and how is it working for you? Has it helped with the fatigue also? How long after you started before you started experiencing relief?
gameon thank you for your response. Im gettin ready to check out the site. My daughter was on predizone for a short time. My mother in law has been on it forever and hates it. It makes her puffy and gain weighht bad. She refuses to take it now...
*~MANDA~*
Posts: 218 | Location: Columbus,In | Registered: March 20, 2007