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Please tell me more - I need to go for operation and need as much info as possible on this Samter's triad
Thanks
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Miche - I'd love to hear what you have to offer, particularly how you're doing 18+ months since your post.
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Hi, I have had three sinus surgeries after which the polyps reappeared immediately. I also have samter's triad. Would you please tell me what you did and how to contact the doctor that took you through the aspirin desensitization process? Nothing else has worked for me and I am my wits end. HELP!!!!
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quote: Originally posted by miche: Anyone suffer from Samter's Triad? I have had 2 sinus surgeries and my polyps came back each time. I decided to try a different treatment that has been studied recently by the allergy community and it has been successful for me! I became desensatized to aspirin, which I was allergic to, thru a doctors care, and my polyps are gone and so are my allergies!
If you have nasal polyps and surgery hasn't helped, shoot me a message and I can fill you in.
Jacqui
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quote: Originally posted by miche: Anyone suffer from Samter's Triad? I have had 2 sinus surgeries and my polyps came back each time. I decided to try a different treatment that has been studied recently by the allergy community and it has been successful for me! I became desensatized to aspirin, which I was allergic to, thru a doctors care, and my polyps are gone and so are my allergies!
If you have nasal polyps and surgery hasn't helped, shoot me a message and I can fill you in.
Jacqui
Could you please let me know, my aunt is severly suffering, 2 or 3 times surgery, alergy, and asthma. i think her polyps has got back. I appriciate your help. thanks
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I have had aspirin triad for 20 years, I first noticed an aspirin allergy around the age of 17, I was experiencing angiodema at the time and it took some time before I came to realise that it the angiodema was caused by aspirin.
It is important for me to mention to you that the angiodema did not occur immediately after taking the aspirin but over the course of 12-24 hours.
The angiodema then took around 48 hours to disappear. It usually occured in the thumb, spreading to the hands and then up the arm to the elbow area before it began to reduce. However , the swellings would also occur in the side of my hip, back of the legs, tongue, lips. I am assuming that it could flare up anywhere really.
Years later around the age of 27 I discovered I had a really bad reaction to NSAIDS I took a Nurofen pill for a headache and my nasal pssages swelled aggressively. Around this time I also developed bronchitis and have suffered with asthma ever since. It was also around this time that I began to lose my sense of smell.
Now at the age of 37, I have huge nasal polyps which have been confirmed by scan. I have absolutely no sense of smell or taste, except on rare occasions where it suddenly comes back for a few days with no explanation or obvious cause. I have allergy to aspirin and NSAIDS and I am not to keen on taking paracetamol either as they seem to irritate my airways. I have continual asthma.
The nasal polyps are keeping me awake at night as I cannot breathe
My question is, do you think I would be a suitable candidate for aspirin desensitization?
I am concerned because of the angiodema symptoms, I feel a great anxiety towards taking an aspirin which may potentially kill me. However, I really want the nasal polyps to disappear I want to be able to smell and taste again.
Any information would be very gratefully received. deb x
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| Posts: 1 | Registered: February 22, 2009 |    |
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I have suffered with all off these issues for 7 years now.Sinus surgery did nothing for me.I could breath better for about 6 months and polyps reapeared!Never regained sense of smell or taste.Although I have researched polyps and sinus issues online,I never came across Samter's Triad.Only after frustration with medical system in Canada,I booked appt at Mayo to hopefully get answers!This is where I learned of aspirin desensitization and Samter's.All these so called specialists never listened or understood when I told them of reaction to ibuprophen and aspirin.Can't wait to try this treatment!
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Oh my goodness, I have suffered with the same symptoms for over 20 years with 4 sinus surgerys for nasal polyps. My polyps have returned once again. I have had no sense of smell or taste for years. I live with congestion,weezing,coughing and sleepless nights. I am very interested in learning more about any and all potential treatments that may prevent my polyps and stuffiness from returning. It sounds like asprin desensitization may provide some relief. Is there anyone else that has had success with this or any other remedies? Thank you
rob g - I am very interested in hearing how your treatment helps you. Good luck!
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