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Posted
I was just told a couple of weeks ago I have Chiari Malformation I. I was wondering if anyone has this and what treatment they have recieved. My Neurologist put me on Topamax 25 mg which caused the dizziness, headaches,not being able to focus to get worse.
I don't know much about this disorder who would love some insight.
 
Posts: 4 | Location: arizona | Registered: October 27, 2008Reply With QuoteEdit or Delete MessageReport This Post
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Hi Monaz,

There is a lot of what appears to be good info on this condition at this site. You may already know all this info but check it out and see for yourself.
Good Luck!!

http://www.healthofchildren.com/C/Chiari-Malformation.html


BELIEVE YOU CAN CONQUER ANYTHING~ AND YOU WILL
 
Posts: 625 | Location: WHERE THE BLUE BIRDS SING | Registered: September 04, 2008Reply With QuoteEdit or Delete MessageReport This Post
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Thank you so much for you help. After going to the web site you provide, I found a web site where people with this malformation talk with each other. It is great to know that I can ask questions and get a better understanding of it.
Thank you so much.
 
Posts: 4 | Location: arizona | Registered: October 27, 2008Reply With QuoteEdit or Delete MessageReport This Post
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Happy it was so usefull for you monaz!!

Good Luck To You Smiler


BELIEVE YOU CAN CONQUER ANYTHING~ AND YOU WILL
 
Posts: 625 | Location: WHERE THE BLUE BIRDS SING | Registered: September 04, 2008Reply With QuoteEdit or Delete MessageReport This Post
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Razzer Hi monaz,
I to have ACM1. I had three surgeries done. I dropped to 8 mm by the time they found it and the headaches were very painful. I have found that being very careful on which doctor you choose is a key to a good out come. Do your home work before any surgeries. If you are 5mm and under the medication may work. I can't tell you enough to be very picky on which doctor you go with. This is so important. Make sure you find out how many ACM patience he or she has worked with. Back ground checks etc. So please be careful! I wish you the best.
Robin
 
Posts: 3 | Location: Texas | Registered: November 14, 2008Reply With QuoteEdit or Delete MessageReport This Post
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